Broadening the Lens – What can we Learn from Other Complex Conditions for Successful Ageing with HIV?
The Cicely Saunders Institute, King’s College London and the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), hosted the Broadening the Lens Symposium on Friday November 9, 2018 in London, UK. The Forum was funded by a Fellowship from the British Academy for Humanities and Social Sciences.
Aim of Symposium was to advance knowledge and partnerships in rehabilitation in the context of HIV across complex chronic and potentially episodic conditions.
Key Areas of Focus included:
- Evidence on effectiveness of rehabilitation interventions and knowledge exchange · Outcome measurement issues
- Rehabilitation service delivery innovations
- Priorities and strategies for moving forward – Where are we going to go from here and working towards a collaborative grant proposal.
The Symposium brought together 77 stakeholders, including researchers, community leaders, clinicians, research and health professional trainees, and people living with HIV from the United Kingdom (UK) (n=74), Canada (n=2), and Ireland (n=1) to exchange research evidence related to rehabilitation, HIV and complex chronic disease. Thirteen speakers were invited to present on research related to the role and evidence for rehabilitation using HIV as an exemplar, role and evidence for rehabilitation in other complex chronic diseases, and advancing patient-reported outcome measures in rehabilitation implementation science research.
For more information on the above Broadening the Lens Symposium at King’s College London (November 2018).
Click here to access all the video presentations from the Broadening the Lens Symposium.
Click here to access the Final Report for the Symposium the report [PDF]. Published online February 28, 2019.
O’Brien KK, Brown DA, Corbett C, Flanagan N, Solomon P, Vera JH, Aubry R, Harding R. AIDSImpact Special Issue – broadening the lens: recommendations from rehabilitation in chronic disease to advance healthy ageing with HIV. Volume 32. 2020. AIDS Care. Issue Sup2: DOI: 10.1080/09540121.2020.1739203
Funding The Symposium was funded by a Fellowship from the British Academy.
CIHRRC was pleased to collaborative with the Canadian Association for HIV Research (CAHR) and Realize (formerly the Canadian Working Group on HIV and Rehabilitation) on two HIV and rehabilitation endeavours at the 26th Annual Canadian Conference on HIV/AIDS Research in Montreal, Quebec, in April 2017.
- Self-Management Interventions in HIV Rehabilitation – Addressing Research Priorities in HIV, Aging and Rehabilitation (Ancillary Meeting – Thursday, April 6, 2017). CIHRRC in collaboration with CAHR, Realize and the Living with HIV (LHIV) Team hosted a one-day participatory working meeting with the aim to translate knowledge and advance an intervention-based research agenda focused on self-management (SM) in the context of HIV, aging and rehabilitation. The meeting was attended by 32 clinicians, researchers, community members, people living with HIV, and trainees from Canada, Ireland and the United States with expertise in HIV, aging, rehabilitation and chronic disease self-management research. Speakers included Claire Liddy (University of Ottawa), Cliona Ni Cheallaigh (Mercer’s Institute for Successful Aging, Trinity College Dublin) and Richard Harding (King’s College London), who spoke about:
- The meaning of successful aging in the context of HIV and rehabilitation
- Chronic disease self-management (click here for PDF)
- Rehabilitation dimensions in patient-reported outcome measures (PROMS) for HIV & self-management strategies
- Advancing HIV, Aging and Rehabilitation: Where Does Rehabilitation Fit in the HIV Care Cascade? (Plenary Session – Friday, April 7th, 2017). This session featured the role and emerging evidence for rehabilitation in the context of HIV, aging, and multi-morbidity across both the life course and the HIV care cascade. To view the video presentation click here.
For more information on the above HIV and rehabilitation sessions at CAHR 2017 click here for the report [PDF].
- CUHRRC E-Update (November 2016) – Updates on the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC): Fall/Winter 2017 Update. Click here to read this article
- CUHRRC E-Update (February 2016) – Updates on the Canada-UK HIV and Rehabilitation Research Collaborative (CUHRRC): Fall/Winter Update. Click here to read this article
- 15th European AIDS Conference, Barcelona, Spain (October 2015)
- On Friday October 23rd, members of of CUHRRC, RHIVA, The European AIDS Treatment Group and UK-CAB were involved in an invited special session on HIV and rehabilitation entitled: Living Well When Living Longer: HIV and Rehabilitation on Friday October 23rd. To access the presentation, please click here.
- Poster Presentation: Comorbidities and disability experienced among adults living with HIV in Canada: Results from the HIV Health and Rehabilitation Survey. Kelly O’Brien et al.
- American Physical Therapy Association Section on Research Retreat, Rhode Island, USA (July 2015)
- Poster Presentation: Yoga for Persons with HIV-related Neuropathy: A Case Series. Mary Lou Galantino & David Kietrys
Advancing the Field of Scoping Study Methodology Meeting (June 2015)
- Members of a Canada-United Kingdom (UK) partnership hosted an international two-day meeting titled Advancing the Field of Scoping Study Methodology on June 8-9th, 2015 Please click here to access the Meeting Report which provides an overview of the evidence presented and the discussions that occurred during the meeting.
- Canadian Physiotherapy Association Congress, Halifax, Canada (June 2015)
- Poster Presentation: Increasing Capacity of Rehabilitation Providers in the Management of HIV: a Knowledge Translation Intervention. Patty Solomon et al.
- Poster Presentation: Reliability and Validity of the HIV Disability Questionnaire (HDQ) with Adults Living with HIV in Canada and Ireland. Kelly O’Brien et al.
- CPA Congress, Halifax, Canada (June 2015) – Session on HIV and Rehabilitation
- On Friday June 19th, 2015, CUHRRC, realize (formerly CWGHR), and RHIVA conducted a session at the Canadian Physiotherapy Association (CPA) entitled: ‘The Chronicle of HIV and Rehabilitation in Two Countries: Bridging Rehabilitation Research Evidence with Clinical Practice in Canada and the United Kingdom.’ Patty Solomon (McMaster University), Kelly O’Brien (University of Toronto), Darren Brown (RHIVA, Chelsea and Westminster Hospital), Tammy Yates (realize formerly CWGHR) and Larry Baxter (Community Member) presented on HIV and Rehabilitation in Canada and the UK. To access the Twitter feed, please visit #HIVandPhysio here.
- Realize (formerly CWGHR) Annual General Forum, Toronto, Canada (June 2015)
- The realize (formerly CWGHR) AGM was held on Monday, June 15, 2015 in Toronto, Canada. Click here for more. for more details.
- World Confederation for Physical Therapy Congress, Singapore (May 2015)
- Poster Presentation: Increasing Capacity of Rehabilitation Professionals in the Management of HIV: A Knowledge Translation Intervention. Patty Solomon et al.
- World Confederation for Physical Therapy (WCPT) Congress, Singapore (May 2015) – Session on HIV and Physical Therapy
- On Saturday May 2nd, 2015, Patty Solomon (McMaster University) and Darren Brown (RHIVA, Chelsea and Westminster Hospital) presented at a panel discussion entitled: ‘New Perspectives on Physical Therapy in HIV/AIDS.’ The objectives of this session were to: 1) consider the impact of HIV/AIDS on the individual, their family, community and the health system; 2) discuss physical therapy interventions and strategies for the management of HIV/AIDS; and 3) share the latest research on the management of HIV/AIDS, across the lifespan and across all regions of the world. To view the panel session, please click here.
- The Canadian Association for HIV Research (CAHR) 2015 Conference, Toronto, Canada (April 2015)
- Click here to view the presentations.
- To view the Final Abstract Book, click here.
- Oral Presentation: Developing Best Practices for Clinical Policies and Procedures for Supervised Injection Services Within Integrated Health Care Settings in Canada. Rosalind Baltzer Turje.
- Oral Presentation: What Should All Canadian Healthcare Students Learn to Increase Health Equity for Aboriginal Peoples Living with HIV: Perspectives on Postcolonialism and Health. Stephanie Nixon.
- Oral Presentation: Comparison of Comorbidities Among Adults Living with HIV in Canada by Age Group: Results from the HIV, Health and Rehabilitation Survey. Kelly O’Brien.
- Oral Presentation: Shaping the Gay Male Subject in the Age of HIV/AIDS: An Examination of Activists’ Perspectives on HIV Discourse in Nova Scotia. Matthew Numer & Jacqueline Gahagan.
- Oral Presentation: Episodic Disability Among Women and Men Living with HIV on Art in Lusaka, Zambia. Stephanie Nixon.
- Oral Presentation: What If it Was You(th)? Reflections on HIV and HCV Prevention Among Youth in the Atlantic Region. Jacqueline Gahagan.
- CUHRRC Membership Teleconference Meeting- Friday January 30th, 2015
- The purpose of this meeting was to provide updates since the 2nd International Forum on HIV and Rehabilitation Research and welcome new members.
- Fifth Annual International Workshop on HIV & Aging, Baltimore, USA (October 2014)
- Platform Presentation: Quality of life and self-reported lower extremity function in adults with HIV-related distal sensory polyneuropathy. Mary Lou Galantino & Dave Kietrys.
- Irish Chartered Society of Physiotherapists (ISCP): The Paul Wagstaff Commemorative Lecture: Fiche bliain ag fás: Living with HIV: Experiences in Ireland and Canada, Dublin, Ireland (November 2014
- Kelly O’Brien and Colm Bergin presented at Trinity College Dublin on the emerging issues in HIV and rehabilitation, role and evidence for rehabilitation (and physical therapy) and the future opportunities highlighting the CUHRRC collaboration.
- Building a Research Proposal to Evaluate the Effect of a Rehabilitation Intervention with Adults with HIV in the UK-London, England (October 2014)
- Following the Forum on October 12th, 2014, 22 researchers (36%), clinicians (32%), community members (18%), educators (9%), and a student (5%) met to discuss the development of a collaborative research proposal that will address research priorities in HIV and rehabilitation. The group discussed an outline for an intervention study to assess the effect of exercise interventions on health outcomes for adults living with HIV. CUHRRC members in the UK are leading the next steps in preparing a proposal for submission in the UK.
- 2nd International Forum on HIV and Rehabilitation Research, London, UK (October 2014)
- On October 11th, 2014, the CUHRRC in partnership with the Rehabilitation in HIV Association (RHIVA) in the UK hosted the 2nd International Forum on HIV and Rehabilitation at the Chelsea and Westminster Hospital.
- Goal of the Forum: 1) To facilitate knowledge transfer and exchange on HIV and rehabilitation research, clinical practice and service delivery, among people living with HIV (PHAs), researchers, clinicians on HIV, representatives of community organizations, and policymakers; and 2) To foster new research and clinical partnerships in HIV and rehabilitation internationally.
- Attendees: Fifty-one participants representing a broad range of stakeholders. The majority worked at a hospital (n=19, 37%) or university (n=12, 24%) and identified as clinicians (n=16, 31%), researchers (n=10, 20%) or community members (n=7, 14%).
- Forum Overview: The Forum was organized into three Clinical Practice and Research Evidence Sessions with 10 presentations (11 speakers) and a Plenary Panel Session with 6 speakers and 1 facilitator. The topics for the three Clinical Practice and Research Evidence Sessions were: 1) Episodic Health and Disability; 2) Rehabilitation Interventions; and 3) Methodological Advances in HIV and Rehabilitation Research. The panel consisted of people living with HIV, researchers and clinicians from the community who had the opportunity to comment on bridging research evidence into practice and policy and reflect on the research evidence presented throughout the day.
- To access the 2nd Forum Knowledge Translation and Exchange (KTE) Library, click here
- BHIVA Autumn Conference- Special Session on HIV and Rehabilitation, London, UK (October 2014)
- CUHRRC and RHIVA conducted a special session at the British HIV Association (BHIVA) Conference entitled: ‘A Tale of Rehabilitation in Two Countries: A Snapshot of HIV and Rehabilitation in Canada and the United Kingdom’. The objectives were to: 1) describe the role and evidence for rehabilitation in the context of HIV; 2) highlight strengths of rehabilitation research and practice in Canada and the UK; and 3) highlight ways in which to recognize the need for rehabilitation, referral and access to rehabilitation for people with HIV.
- This session was moderated by Esther McDonnell (RHIVA, Chelsea and Westminster Hospital) and speakers Patty Solomon (McMaster University), Kelly O’Brien (University of Toronto), Francisco Ibáñez-Carrasco (Ontario HIV Treatment Network), Darren Brown (RHIVA, Chelsea and Westminster Hospital) and Elizabeth Stevens (Birmingham Hearts of England NHS Trust) presented on HIV and Rehabilitation in Canada and the UK). Click here to see the BHIVA Special Session Presentation slides.
- The 16th International Congress of the World Federation of Occupational Therapists in collaboration with the 48th Japanese Occupational Therapy Congress and Expo, Yokohama, Japan (June 2014)
- Oral presentation: Keizoku wa chikara nari: Continuing on after a setback is its own kind of strength: performing Everyday Activities in the context of HIV-associated Neurological Disorder. Camilla Hawkins.
- Poster presentation: What has Gender Got to Do with It? Assessing the performance of Everyday Activities by Men and Women with HIV-associated Neurocognitive Disorders. Camilla Hawkins.
- College of Occupational Therapists Annual Conference, Brighton, England (June, 2014)
Facilitated poster discussion entitled: Specialist HIV OTs in the UK and Canada – a dying breed or a chance for renewal? Click here to view the presented poster.
- The 23rd Annual Canadian Conference on HIV/AIDS Research, St. John’s, Newfoundland, Canada (May, 2014)
- Oral presentation entitled: Advancing Research and Practice in HIV and Rehabilitation: A Framework of New and Emerging Research Priorities in HIV, Disability and Rehabilitation. Click here to view the presentation slides
- Post presentation entitled: Reliability and Validity of the HIV Disability Questionnaire (HDQ) with Adults Living with HIV in Canada and Ireland. Click here to view the presented poster.
- Poster presentation: Aging with HIV: A Model of Disability. Solomon P, O’Brien K, Wilkins S, Gervais N.
- Poster presentation: The Sepo II Study: Using a Disability Framework to examine experiences of ART among women and men living with HIV in Lusaka, Zambia. Nixon S, Bond VA, Solomon P, Hanass-Hancock J, Mainbolwa M, Menon A, Siwale M, Simwaba P, Zack E, Ibáñez-Carrasco F, Musheke M, Mwamba C, Cameron C.
- Oral presentation: The National Consensus Statement on Women, Trans People and Girls and HIV Research in Canada: Implications for Epidemiology and Public Health. Wertheimer S, Gahagan J, Scruton S, Condran B, Loufty M, Montgomery R, Stein N, Gathering of Our Spirit Collaborative.
- British HIV Association 2014 Spring Conference, Liverpool, England (April, 2014)
Poster presentation entitled: Quality of life outcomes and service user evaluation of a pilot physiotherapy rehabilitation programme for people living with HIV. D.Brown, A.Claffey & M.Nelson. HIV Medicine, 2014, 15 (Suppl 3), 32
- CUHRRC Membership Teleconference Meeting- Wednesday January 22nd, 2014 (Teleconference)
The purpose of this meeting was to introduce new CUHRRC members Mary Lou Galantino and David Kietrys from the United States of America share updates among members on CUHRRC related activities. The meeting included a webinar presentation of David and Mary Lou’s Program of Research: HIV Disease and Distal Sensory Polyneuropathy (DSP). Click here to view the presentation slides.
- International Forum on HIV and Rehabilitation Research, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, in Toronto, Ontario, Canada – June 13th – June 14th
- The CUHRRC held the first ever International Forum on HIV and Rehabilitation Research in collaboration with realize (formerly CWGHR) Annual General Meeting and realize‘s 15th Anniversary Celebration. The aim of the Forum was to translate research evidence knowledge on HIV and rehabilitation in Canada, UK, USA and Ireland, and to identify new and emerging research priorities in HIV and rehabilitation.
- The event was a success in integrating research and clinical practice in the field of HIV, disability and research. Over 100 participants, including people living with HIV, researchers, clinicians, representatives from AIDS Service and Community-based Service Organizations, educators and policy makers from Canada, Ireland, USA and the UK attended the event providing opportunities for new collaborations and partnerships in the field. Click here to view the attendees at the International Forum on HIV and Rehabilitation Research. Seventeen (17) CUHRRC members presented on their research during the Forum. The proceedings of the International Forum can be accessed online via an electronic workbook at http://bit.ly/12fDEha.
- Click here to access the Knowledge Transfer Exchange (KTE) Library which contains the Forum report, video recordings of presentations from the plenary and panel sessions, and the speakers’ presentation slides (translated in French and English).
- The Forum was funded by a Dissemination Grant from the Canadian Institutes of Health Research (CIHR), HIV/AIDS Research Initiative and the Public Health Agency of Canada, and supported the Ontario HIV Treatment Network and the University of Toronto. For more information about this event, please contact Kelly O’Brien at firstname.lastname@example.org or Ayesha Nayar at email@example.com
- HIV, Health and Rehabilitation Survey (HHRS) Face-to-face Meeting, University of Toronto, in Toronto, Ontario, Canada- Wednesday June 12th, 2013
- The HHRS Team met face-to-face on Wednesday June 12, 2013 at the University of Toronto, Canada to review the results from the second pilot and prepare for the full implementation of the HIV, Health and Rehabilitation Survey. The team will be revising the instrument and recruitment materials over the summer and reaching out to organizations interested in supporting the recruitment. We look forward to fully launching the survey Canada wide in Fall 2013.
- The HIV, Health and Rehabilitation Survey is funded by the CIHR, HIV/AIDS Research Initiative. For more information, please contact Ayesha Nayar, Research Coordinator at firstname.lastname@example.org.
- CUHRRC Membership Teleconference Meeting – Tuesday February 12th, 2013 from 1pm-2pm (Eastern Standard Time)
- The purpose of this meeting will be to introduce new CUHRRC members and provide updates on the upcoming CUHRRC-realize International Forum on HIV and Rehabilitation Research. For more information, please contact Ayesha Nayar at email@example.com.
- Ontario HIV Treatment Network Conference, Toronto, Ontario, Canada (November 2012)
- Oral presentation entitled: Conducting online survey research with people living with HIV: Lessons learned from piloting the HIV, Health and Rehabilitation Survey. Click here to view the abstract.
- Rehabilitation in HIV Association (RHIVA) Rehabilitation Research Meeting, Manchester, United Kingdom (July 2012)
- On July 16th, 2012 the UK based Rehabilitation in HIV Association (RHIVA) hosted a one day symposium at North Manchester Hospital. Kelly O’Brien presented on the development of the HIV Disability Questionnaire and the Episodic Disabilities Framework and the E-module for evidence informed HIV rehabilitation, which many CUHRRC members contributed to and is available online with free access at the realize (formerly CWGHR) website (www.realizecanada.org).
- UK CUHRRC members, Liz Stevens (OT) presented an update on research in developing neurocognitive norms at Birmingham Heartlands Hospital and Rebecca Mullins (PT) from Guys and St Thomas’ presented on the relationship of medication adherence and exercise adherence in an outpatient exercise group. Click here to view the attendees at the RHIVA HIV Rehabilitation Research Study Day, North Manchester Hospital in July 2012.
- Canadian Association for HIV Research Conference, Montreal, Quebec, Canada (April 2012)
- Poster presentation entitled: HIV, Chronic Disease, and Rehabilitation in Canada: A Scoping Review of HIV Policy Approaches. Click here to view the poster.
- World Congress of Physical Therapy (June 2011) – Poster presentation describing the formation and current activities of CUHRRC. Click here to view the poster.
- Realize (formerly CWGHR) Annual General Meeting (June 2011) Oral presentation describing the latest research activities of the CUHRRC. Click here to view the slides.
- Ontario HIV Treatment Network Conference (November 2010) Poster presentation describing the formation of the CUHRRC at the inaugural meeting in October 2009. Click here to view the poster.
- Realize (formerly CWGHR) Annual General Meeting (June 2010) Oral presentation describing the formation of the CUHRRC and the proposed research activities.