Canadian HIV/AIDS and Chronic Pain Society Opens its Doors – December 1, 2022
Posted on 2022-12-12
On December 1, 2022, the Canadian HIV/AIDS and Chronic Pain Society officially opened its doors! The Canadian HIV/AIDS and Chronic Pain Society will collaborate with persons living with HIV/AIDS (PLWH), populations at risk, AIDS Service organizations, peer and frontline workers, healthcare professionals, researchers, government, and multi-level stakeholders to improve knowledge and access to HIV and comorbidity pain treatment, care, and support in Canada. The group will also advocate for research funding, partnerships, and government assistance for chronic pain and HIV research.
The Canadian HIV/AIDS and Chronic Pain Society is a diverse Board of Directors, 8 out of 9 with lived experience of chronic pain and HIV, and all HIV+, experienced advocates and community-based researchers: Michael Parsons, Guy-Henri Godin, Shelly Tognazzini, Brenda Gagnier, Adrian Betts, Richard Baker, Donald Turner, Christian Hui, and Colleen Price.
Chronic Pain and HIV is a silent epidemic, having bio-psychosocial impacts. It is an invisible disability, and it can be detrimental to health-related quality of life, medication adherence and mental health and wellness.
We do not know the number of people living with HIV impacted by chronic pain in Canada. There is no epi-data, no dedicated research funding, and a very dire lack of services, programs, guidelines, and policies regarding our pain treatment, care, and support. It is estimated that over half of PLWH suffer from chronic pain in their lifetime, and this prevalence increases to 83% in some populations (Parker, R. et al. & Madden, V. et al.).
To become a member, discuss research, educational or advocacy opportunities, or for partnerships or collaborations, please contact Colleen Price at: hivchronicpainandwellness@gmail.com.
Now Available: September HIV in Motion Community of Practice Presentation Recording
Posted on 2022-12-01
The 8th HIV in Motion Community of Practice (CoP) session took place on September 13, 2022. At this session, Nora Sahel-Gozin, CIHRRC member and MSc graduate from the Institute of Health Policy, Management and Evaluation (IHPME) of the Dalla Lana School of Public Health at the University of Toronto, presented on her research that involved interviews with women living with HIV about their experiences with exercise, body image, cultural expectations, stigma, seeking a gym buddy, and staying active. The CoP also included a roundtable discussion with community members, clinicians and researchers on HIV and exercise.
In case you missed it, the session recording is now available here or on the HIV in Motion video library (along with previous CoP session recordings).
HIV in Motion is funded by the Canadian Institutes of Health Research (CIHR), HIV/AIDS Community-Based Research Program (FRN-170102).
Frailty and frailty screening: A qualitative study to elicit perspectives of people living with HIV and their healthcare professionals
Natalie St. Clair-Sullivan and colleagues, including CIHRRC members Jaime Vera and Richard Harding, published a qualitative study on perspectives of people with HIV and their healthcare professionals on frailty and frailty screening. “Frailty was described as a series of losses around mobility, social inclusion, independence and mental acuity, which could happen at any age.” Read the article here: https://onlinelibrary.wiley.com/doi/full/10.1111/hiv.13419
Exploring Experiences Engaging in Exercise from the Perspectives of Women Living with HIV: a Qualitative Study
Nora Sahel-Gozin, a graduate of the Institute of Health Policy, Management and Evaluation (IHPME) of the Dalla Lana School of Public Health at the University of Toronto, conducted interviews to explore the experiences engaging in exercise from the perspectives of women living with HIV. Check out her poster here:
https://cihrrc.ca/wp-content/uploads/2022/10/Nora-Poster-CIHRRC-Website.jpg
HIV & Aging Workshop
The 13th International Workshop on HIV & Aging will take place online from 13-14 October, 2022. See more information, including information on scholarships, check out the conference website here! The deadline to apply for a scholarship is October 6th, 2022.
Workshop Date: 13-14 October 2022
Format: Virtual
Registration: https://bit.ly/3QxpaEH
HIV in Motion Launches a New Website!
Posted on September 13, 2022
HIV In Motion Launches a New Website. Click here to access: https://hivinmotion.ca.
HIV in Motion is a Community of Practice (CoP) that provides a dynamic space for stakeholders to learn, exchange ideas, promote dissemination in academic and community ways, promote uptake and evaluation of learning and results about movement, physical activity, and exercise for persons living with HIV among, and with, people living with HIV.
Visit HIV in Motion for access to a wealth of information on all things related to HIV, physical activity and exercise. The site hosts a video library of speaker sessions and podcasts and updates on the HIV in Motion Research Study.
CIHRRC is a founding partner and collaborator of HIV in Motion.
Special thanks to Gay Men’s Health Collective for leading the website re-development!
Click here to access the new website: https://hivinmotion.ca.
The HIV In Motion Study is funded by the Canadian Institutes of Health Research (CIHR), HIV/AIDS Community-Based Research Program (FRN-170102).
Poz Women Exercise! A FREE online HIV in Motion event September 13, 2022
Posted on June 20, 2022
When: Tuesday, September 13, 2022 from 12:00 – 2:00 PM EDT
Register: Click here
Keynote speaker: Nora Sahel-Gozin
Nora will present her research which involved interviews with women living with HIV about their experiences with exercise, body image, cultural expectations, stigma, seeking a gym buddy, and staying active.
HIV in Motion is funded by the Canadian Institutes of Health Research (CIHR), HIV/AIDS Community-Based Research Program (FRN-170102).
International Workshop on HIV and Aging – October 13-14 2022
Posted on June 20, 2022
The 13th International Workshop on HIV & Aging will take place online from 13-14 October, 2022. See more information, including information on abstract submission process, check out the conference website here, or view the International Workshop on HIV & Aging Flyer! Abstracts are due by 22 July, 2022 at 23:59 EDT.
HIV Recent Publication: “Prevalence, severity, and risk factors of disability among adults living with HIV accessing routine outpatient HIV care in London, United Kingdom (UK): A cross-sectional self-report study”
Posted on May 13, 2022
Congratulations to the dedicated research team on their new publication on the prevalence, severity, and risk factors of disability among adults living with HIV in an outpatient setting in London, UK.
The article is accessible at: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0267271
Congratulations to the research team for all their efforts and contributions to this research!
HIV in Motion Community of Practice – Love it or leave it (in a drawer): what the evidence has to say about Fitbits and other Wireless Physical Activity Monitors – Upcoming session on May 17th from 12-2pm EDT.
On May 17th, 2022 from 12-2pm EDT the HIV in Motion Community of Practice will be hosting an online webinar as a part of the HIV in Motion Community of Practice Quarterly Series. The presenters will be discussing the pros and cons of Fitbits and other Wireless Physical Activity Monitors.
Keynote speaker: Tizneem Jiancaro (PhD) – Department of PT, University of Toronto
Panel:
- Recent Fitbit users/study participants
- Tizneem Jiancaro
- Helen Trent (coach at YMCA of Greater Toronto)
- Darren Brown (PT, PhD) – Kobler Rehabilitation Class, Chelsea and Westminster NHS Foundation Trust
Balance demonstration: by Helen Trent
Link to register: https://bit.ly/RegisterHIMfeb17-2022
Acknowledgements
This session is organized by the HIV in Motion Community of Practice.
Sponsored by: Canadian Association for HIV Research and Canadian Association for Global Health. The HIV in Motion Research Study is funded by the Canadian Institutes of Health Research.
Recent Publication: “Considerations for developing and implementing an online community-based exercise intervention with adults living with HIV: a qualitative study”
Posted on 2022-04-17
A group of MScPT students at the University of Toronto published results of a qualitative study examining the need for, and utility of online community-based exercise (CBE) interventions with adults living with HIV and identify factors to consider in developing and implementing an online CBE intervention with adults living with HIV.
The article is openly accessible at: Considerations for developing and implementing an online community-based exercise intervention with adults living with HIV: a qualitative study
The PDF can be directly accessed at: https://bmjopen.bmj.com/content/bmjopen/12/4/e059294.full.pdf
Congratulations to the research team for all their efforts and contributions to this research!
HIV in Motion Community of Practice Webinar Session – Exercising Together – Team-Based Physical Exercise and HIV – February 8, 2022 – Links to Access Speakers and Sessions
Posted on 2022-04-17
On February 8, 2022 the HIV in Motion Community of Practice hosted an online webinar as a part of the HIV in Motion Community of Practice Quarterly Series. 
The aim of this session was to discuss the evidence and experiences with team-based / group-based / peer-based forms of physical activity in the context of HIV. This session included a dynamic panel discussion with physiotherapists, fitness personnel and community members living with HIV from Canada, United Kingdom and United States who discussed the evidence and experiences with peer-, group- and team-based forms of exercise and physical activity.
Keynote Speaker: Natalie St. Clair-Sullivan – Physiotherapist, Brighton and Sussex University Hospital, United Kingdom. Lead Physiotherapist for the Kings Cross Steelers Rugby Club (UK)
Click here to access:
- Keynote session with Natalie St. Clair-Sullivan – Evidence on Team / Group-Based Exercise in HIV: http://bit.ly/GroupSportsHIM
- HIV in Motion Stretching Demonstration Video. https://bit.ly/YMCAannamariaSTRETCHING
Acknowledgements
This session was organized by the HIV in Motion Community of Practice.
Sponsored by: Canadian Association for HIV Research and Canadian Association for Global Health. The HIV in Motion Research Study is funded by the Canadian Institutes of Health Research.
